Your PAH healthcare professionals are your best source of information. The following resources may provide additional information:
Pulmonary Hypertension Association (www.phassociation.org) Provides support, education, advocacy, and awareness to the PAH community.
PHCentral (www.phcentral.org) Offers PAH information and support to people with PAH and to healthcare providers.
Scleroderma Foundation (www.scleroderma.org) A national organization for people with scleroderma; provides support and education to patients and funds research into the disease.
National Institutes of Health (www.nih.gov) A government agency that conducts and funds medical research. The NIH maintains an online library you can use to read about health topics, including PAH.
Know Your PH (www.knowyourph.org) Provides information for patients with pulmonary hypertension (PH), and for families and friends with PH.
Insights (www.InsightsOnPAH.com) An educational program designed exclusively for individuals with PAH and those who care for them.
IMPORTANT SAFETY INFORMATION
BOXED WARNING
Because of the risk of birth defects, LETAIRIS is available only through a special restricted distribution program called the LETAIRIS Education and Access Program (LEAP). To receive LETAIRIS, you must talk to your doctor, understand the benefits and risks of LETAIRIS, and agree to all of the instructions in the LEAP program.
Serious birth defects: LETAIRIS can cause serious birth defects if taken during pregnancy. Women must not be pregnant when they start taking LETAIRIS or become pregnant during treatment. Women who are able to get pregnant must have a negative pregnancy test before beginning treatment with LETAIRIS and each month during treatment. Your doctor will decide when to do the test, depending on your menstrual cycle. Women who are able to get pregnant must use two acceptable forms of birth control, during LETAIRIS treatment and for one month after stopping LETAIRIS. If you have had a tubal sterilization or have an IUD, these methods can be used alone and no other form of birth control is needed. Talk with your doctor or gynecologist (a doctor who specializes in female reproduction) to find out about how to prevent pregnancy. Do not have unprotected sex. Talk to your doctor or pharmacist right away if you have unprotected sex or if you think your birth control has failed. Tell your doctor right away if you miss a menstrual period or think you may be pregnant.
Please see patient Medication Guide and full prescribing information, including boxed WARNING.
